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Mom on the Move: Kim Dorr

Posted: 08/30/11 11:00 AM (Modified: 08/30/11 11:44 AM)

Meet Mom on the Move Kim Dorr. Kim's family dynamic changed forever when her son was born with a rare genetic disorder. Find out how Kim's work with Western Wishes has brought joy to her son and other young children.

I am married to a wonderful husband, Dennis. We have two children together, Maci (6) and Kaleb (4). When Maci was born she had some mild medical problems, but little did we know how much she would prepare us for our second child. Kaleb was born with Thrombocytopenia Absent Radius (TAR) Syndrome and flipped our world inside out. I had to become an expert in TAR Syndrome very quickly.

TAR is a recessive genetic disorder that is rare in the US. Kaleb was born without radius bones in each arm and his platelets in his blood are not as high as they should be. The absence of the radius is a physical abnormality causing clubbed hands. The platelet issue has been the most frightening- he runs the risk of internal bleeding. Also the signs that his platelets are low are sometimes hard to read. Kaleb is 4 years old and has spent 115 days in the hospital, received countless plasma transfusions, and has endured 10 surgeries thus far. He still has a way to go, but the Shriner's Hospital in Shreveport, LA have been so wonderful to us and take very good care of our son.

I spent the majority of Kaleb’s first two years driving back and forth to doctor appointments. Today I still take him to the doctor often but only when needed and not near as much as before. Kaleb is all COWBOY and loves to ride his horse Shorty when he gets the chance. He is a smart, fun, caring little boy and one of the happiest kids I know.  

I am the Oklahoma Director for Western Wishes, a 501c3 organization that is dedicated to brightening the lives of children by granting wishes geared towards the western way of life. I have been the Oklahoma Director for just a few short months and find this position more of a passion than a job. I love the expressions, the smiles, the amazement when a little one gets to meet their hero. I am also the only Director that is also a wish child's mom. My son Kaleb was granted a wish in June and we spent 4 days in Reno, NV to meet the top 200 team ropers in the world. We got to meet rodeo legends, Bob Fiest, Larry Mahan, Tuff Hedeman, Trevor Brazile; Horsemanship phenom Chris Cox, and made many new friends. Western Wishes takes up a lot of my time, however, the majority of the time I am hosting a wish or fundraising I am able to bring my kids along with me. Along with my Western Wishes passion, I also work full time as an administrative assistant for a Architecture/Construction Firm in Broken Arrow, I am the PTA president at my daughter's school, Secretary for the Softball Board, and help coach softball. Needless to say I am quite busy. However I always find the time to spend with my kiddos.

You can check out Western Wishes at www.westernwishes.org.

Old to new | New to old
Aug 30, 2011 01:39 pm
 Posted by  sandjhughes@live.com

Kim is such a wonderful mom and has a beautiful family!!

Aug 30, 2011 06:06 pm
 Posted by  Anonymous

Kaleb is one heck of a little boy, he doesn't let his handicap slow him down one bit. Maci loves her brother very much and keeps her eye out for him so he doesn't hurt himself. They have both been thru so much but still they have a joyful outlook on life.

Aug 31, 2011 08:00 pm
 Posted by  Anonymous

Kim is a wonderful person! Kudos to her for the courage and strength she's had and will continue to have!!!!

Aug 31, 2011 08:00 pm
 Posted by  Anonymous

Kim is a wonderful person! Kudos to her for the courage and strength she's had and will continue to have!!!!

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